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Help Avishi Survive Rare Genetic Disorder MPS Type VI

News18.com

First published: October 19, 2016, 1:05 PM IST | Updated: October 20, 2016
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Help Avishi Survive Rare Genetic Disorder MPS Type VI
This photo is for representational purpose only.

Crowdfunding is increasingly becoming a reliable way to raise money for important ideas, crucial projects, and in a few cases, emergencies too. With the way the concept of crowdfunding has struck a chord with people, it has once again proved just how much it can inspire people to support initiatives that are both compelling and meaningful.

Abhisek and Shikha Jain's 4-year-old daughter Avishi has been diagnosed with MPS Type VI (Mucopolysaccharidosis Type 6) - a rare, debilitating and life-threatening genetic disorder. If it is left untreated, the expected life span would fall in the category of 20 to 25 years, followed by deterioration of the body condition with every passing year.

The dearth of expert medical centers with experience, cutting-edge technology and research for MPS has been the reason why the treatment for this rare disease in India still remains difficult. Avishi’s parents now need to shift her to UMC Utrecht (Netherlands) for the required treatment. The hospital cost is 1,94,000 Euros or Rs. 1.47 crores, with another Rs. 48 lakhs towards living expenses for 1-year at Netherlands. Total cost of treatment is Rs. 1.94 crores approximately. They have already raised Rs. 90 lakhs on another crowdfunding platform Milaap.

India’s crowdfunding platform BitGiving has collaborated with them to help Avishi's parents fundraise the rest of the amount. This is a rare case when two crowdfunding platforms have come together for the first time to help save a child's life.

They have already raised Rs. 1,00,06,377, courtesy 1609 contributors. They are still falling short of Rs. 50,00,000 to ensure Avishi's treatment done in the Netherlands.

Let us all work towards achieving the common goal and contribute and make the dream more attainable. Let us all come together for Avishi and restore faith in humanity.

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