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Indian Woman Suffering From Rare Disease Fights to Remain in UK For Treatment

Bhavani Espathi is fighting against the deportation order as her treatment requires immunosuppressants like Ustekinumab, which is currently unavailable in India.


Updated:May 13, 2019, 7:28 PM IST
Indian Woman Suffering From Rare Disease Fights to Remain in UK For Treatment
Representational image.

London: An Indian woman suffering from a rare disease, which even left her in a coma after major surgery, is fighting against being deported from the UK back to India.

Bhavani Espathi, who came to Britain as a student, suffers from Crohn's Disease a digestive tract disorder for which she requires a specific immunosuppressant which she says is currently unavailable in India.

"The only thing keeping me somewhat 'healthy' besides constant medical attention are immunosuppressants such as Ustekinumab, which is currently unavailable in India, the country that the British Home Office believes is a place I should return for palliative care' instead of living in the UK," says the 31-year-old, who has launched an online campaign to seek support for her case.

The UK Home Office recently issued a letter stating that her application for leave to remain in the UK had been refused and that she was liable to be forcibly removed.

The letter arrived as she lay in a coma after a major operation and her fiance, Martin Mangler, appealed against the decision while she was still unconscious. Medical letters from her doctors stated that her life would be at risk if she were to travel.

The Home Office refusal letter to Espathi's appeal, issued in December last year, states: Whereas it is accepted that the health care systems in the UK and in India are unlikely to be equivalent, this does not entitle you to remain here.

"Should it be the case that your illness deteriorates, or you are unable to access treatment, you have not shown a lack of palliative care or family support available in India.

"I thought there was no way they could dispute my application. I wasn't expecting them to say that Even if the drugs aren't available then you could receive palliative care', she told The Independent newspaper.

"All of this is making my condition worse. You're meant to avoid stress, but I can't help my body's reaction to certain things. I'm currently in hospital and haven't been able to put on weight stress is a big part of it, she said.

London-based Espathi had to be admitted to hospital again last month due to complications with her bowel. She currently relies on a drip and has to have a bag attached to her stomach and is waiting to undergo further surgery in the coming months.

This decision should be immediately reviewed and Ms Espathi should be allowed to stay in the country which has become her home, where she can get the medical care she desperately needs, said Chai Patel, legal director at the Joint Council for the Welfare of Immigrants (JCWI).

A UK Home Office spokesperson said: In March 2019, the Home Office was made aware of fresh evidence in this case and this is currently being reviewed.

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