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Save Arian: US pharma firm to provide drugs to the Hunter Syndrome patient for life

Aug 05, 2014 03:11 PM IST India India
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New Delhi: It is a victory for the CNN-IBN and change.org Save Arian campaign and great news for the 12-year-old boy Arian who suffers from the rare genetic disorder called Hunter's syndrome. The US pharmaceutical company that manufactures the expensive drug used to treat the disorder has agreed to provide Arian's family with the medicine for the rest of his life.

A single dose of the drug which Arian takes once a week costs Rs 7 to 8 lakh. This great news comes after the Save Arian campaign raised almost Rs 25 lakh to support Arian's medical treatment.

Arian's parents had appealed for help from the government to make this treatment available in India and to subsidise it.

Hunter syndrome is a rare genetic disorder caused by the lack of a crucial enzyme in the body. It first affects the limbs and then slowly spreads to the brain till it proves fatal. It is a reality that's been haunting Arian's parents for the past 9 years.

Desperate to save their son's life, Arian's parents started an online petition at Change.org. The campaign went viral with a retweet by actor Shah Rukh Khan. Health Minister Harsh Vardhan, who had been petitioned to subsidise the drug, promised all help.

Donate For Arian

You can donate for Arian through either cheque or online banking funds transfers (NEFT, RTGS, and so on). His parents have opened an account in his name specifically for this purpose.

Bank A/c Details:

Account Number - 0172010368001

Account Name - Arian Chowdhury

Bank Name - United Bank of India

Branch Name - Shibpur, Howrah

IFSC Code - UTBI0SHB126

For international wire transfers, in currencies other than Indian, please use the following SWIFT code:

UTBIINBBPKS

If you'd like to write in, you can do so at connect.to.arian@gmail.com