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Father of Arian, who is suffering from Hunter Syndrome, to meet Dr Harshvardhan

Jun 20, 2014 08:17 AM IST India India
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New Delhi: The CNN-IBN-change.org campaign to save 12-year-old Arian has had an impact. And in not just the donations that have come toward this cause, but also now the Union Health Minister Dr Harshvardhan will be meeting Arian's family.

Arian is fighting a rare genetic disorder called hunters syndrome and CNN-IBN has been giving voice to his appeal to make the expensive treatment available and subsidized.

The wait is over. After a week of campaigning, hundreds of wishes and donations later- a father's plea is heard by the Union Health Minister Dr Harshvardhan. The Health Minister has agreed to meet Arian's family to see what can be done to save this 12-year-old suffering from the rare Hunter Syndrome.

"I am very happy that I will be going to meet Dr Harshvardhan. I am very grateful to CNN-IBN and Change.org through who I have got this opportunity," said Shib Shankar Chowdhury, Arian's father.

Bags packed and ready to go. This family is travelling from Kolkata to Delhi to plead its case with the Union Minister.

"I am very much nervous. My tension is rising and I am revising what to say to Dr Harshvardhan for my son's rare disease and what decision he will be taking," said Shib Shankar Chowdhury.

Arian's only cure is one of the most expensive drugs in the world. But this family is not just fighting for itself but for those battling this disease without any means to afford its cure.

"My plea to Dr Harshvardhan is as the medicine is not available in India, so make it available in India and subsidize the cost of the medicine so that I can afford it for my son," said Chowdhury.

As these parents try to fight for their cause, support is pouring from across the country after the CNN-IBN & Change.org campaign. More than 300 people have donated close to Rs 18 lakh.

But as the big day finally arrives, Arian needs the prayers and wishes more than ever before.